As my body attacks itself - my journey with autoimmune disease & chronic pain
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Nov52017
3

Unsatisfying diagnoses

Now that I’m determined to begin writing again for my own mental and emotional health, I’ve realized that sometimes I don’t know where to start.  I have a list of topics I want to address – but the problem is that they’re so intertwined that I don’t know which one to start with, or how… Read More

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Nov12017
5

Resuming after a not-so-brief pause

My last post was July 2015.  It’s now November 2017.  I’m not sure at all, even in the slightest, how 27 months have gone by.  I have thought many, many times about what I want to sit down and write and I never have gotten to it.  But several things happening lately have convinced me… Read More

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Jul122015
0

The Gluten-Free Bakery

So it’s been waaaaaay too long since I’ve updated.  What have I been up to?  Baseball tournaments, dance, baking a bazillion gluten-free breads and treats for my daughter. We went to the children’s hospital recently for our long-awaited appointment with the pediatric gastroenterologist.  A very wonderful doctor confirmed that my daughter does not (at least… Read More

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May152015May 18 2015
0

Some musings during my “silly season”

Some people get really busy during the holidays, for me it’s April and May.  I call it “silly season.” It’s the perfect storm of dance competition season hasn’t yet ended, baseball tournament season has begun, both my job for the previous 5 years and this one seem to ramp up at the end of the… Read More

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Apr282015
0

Sjogren’s Awareness Month Book Sale!

I haven’t written in a while – it’s what I call “silly season” – that perfect storm of the last part of dance competition season, the first part of baseball season, the end of the school year, Memorial Day, Birthdays, and so on…and this year I have the struggles with my daughter’s health thrown in. … Read More

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Apr72015
4

The day-to-day living wears you out

I saw this image posted somewhere – some facebook or twitter or something.  I saved it to my phone to write about some day and while I was flipping through my photos yesterday looking for an old one of the kids or something I ran across it. Yes.  This. I have been the idiot that… Read More

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Apr22015Apr 2 2015
4

Alopecia, Celiac, Gluten, oh my!

I haven’t written anything in a while – mostly because I just haven’t known what to write because so much is going through my mind these days. It’s taxing and complicated to have autoimmune disease yourself.  It’s a million times worse to watch it happening in your child.  I’m so very thankful that I’ve gone… Read More

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Mar232015
0

My daughter’s second alopecia occurrence

You may remember when I wrote about my 9 year old having an episode of alopecia areata last summer.  It was heart-breaking and gut-wrenching for me.  The spot filled back in after the treatment the pediatric dermatologist gave us to use and I prayed and hoped that it would be the end of it, that… Read More

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Mar212015Mar 22 2015
8

I’m not flaky, I’m sick

I used to be the person that could juggle a million balls in the air.  I wrote a chemistry textbook, made prom dresses for some of my students, taught high school full time, had a toddler and was pregnant all at the same time during one point in my life. Not only can’t I do… Read More

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Mar122015Mar 12 2015
0

“I’ll send you an email” – Signs my family is learning accommodations that work with my Brain Fog!

I don’t know if it started happening because I got the neuropsych evaluation that documented my “Brain Fog” or if it’s just a coincidence that it started happening around the same time, but either way I’ve noticed lately that my family is starting to help me out with my memory and processing problems. My husband… Read More

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Some of my favorite links

  • Autoimmune Mom
  • American Autoimmune Disease Association
  • Arthritis Ashley
  • But you don’t look sick
  • Counting My Spoons
  • Jennifer’s Way
  • Reasonably Well
  • Sjogren’s Syndrome Foundation
  • Sjogren’s World
  • Thoughts and Ramblings on Life, Love and Health

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