As my body attacks itself - my journey with autoimmune disease & chronic pain
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Category Archives: Career

Nov12017
5

Resuming after a not-so-brief pause

My last post was July 2015.  It’s now November 2017.  I’m not sure at all, even in the slightest, how 27 months have gone by.  I have thought many, many times about what I want to sit down and write and I never have gotten to it.  But several things happening lately have convinced me… Read More

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Feb242015Feb 25 2015
9

Just one example of daily impact of invisible chronic disease

My husband and I were on the way home from a parent meeting for parents of kids going into middle school next year (first, let’s stop and acknowledge that I’m so not ok with my boy growing up!). I don’t even remember how it came up but I described to him just one example of… Read More

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Feb232015Feb 23 2015
5

How to move past guilt with chronic illness

I’ve talked a lot about the guilt that comes with having a chronic illness – guilt that I’m not able to do some things with my kids, guilt that my husband and kids have to pick up the slack for me around the house, guilt that I can’t volunteer and help others like I would… Read More

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Feb192015
2

Brain Fog – Neuropsych report

I wrote about my experiences with Brain Fog earlier on this blog. It’s still happening, and probably increasingly so (both in frequency and severity). The following excerpt is a pretty good summation of how I’ve felt for the past few years.  It’s from Susan McDermott, M.D.’s talk “Brain Fog and Other Central Nervous System Symptoms:… Read More

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Feb132015Feb 13 2015
0

No, I won’t be doing my hair today…

I saw this image on twitter recently and it first made me laugh…because, yep, that’s life.  But then it made me sad. Remember back last spring when I tried the experiment to see if looking better would make me feel better?  I first talked about it here and then updated here. I’d decided to put… Read More

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Feb52015Feb 4 2015
1

Perfectionism and chronic disease

While my daughter is in dance class I work at the front desk at the dance studio.  I do a lot of computer work (her website, studio management software, tuition billing, etc.) and during this time of year I help out with costumes.  We’re getting ready to start competition season and there are a whole… Read More

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Sep122014Jan 14 2015
0

“Just go home” – the struggle chronic illness sufferers have with this advice

First, before I get into the real point of this post – holy cow, it’s been a long time since I’ve posted…I really need to be more regular (for my own sake – it’s so good for me to organize and communicate my thoughts in this way).  So, first, a couple of really quick updates.… Read More

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Feb62014Jan 14 2015
0

Daily naps are not fun

When I had small children, I never understood why they fought nap time.  I always thought to myself “If someone would tell me to take a nap everyday, I’d love it…I’d never fight it!”  Of course, this was from the perspective of a normal, healthy, energetic, busy, efficient, successful mother of two young children. Several… Read More

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Dec62013Jan 14 2015
2

Realities of living, and working, with this disease

I had an all-day interview for a new job two days ago.  It involved 4 or 5 meetings with various people, lunch and teaching a class for college students studying to be teachers about using educational technology to “get outside the classroom”. I really liked the people, the place, the energy and just about everything… Read More

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Nov192013Jan 14 2015
0

“But you were able to do that…why can’t you do this?”

I’ve been posting a lot about lately about dealing with doctors – time to switch it up a little! 🙂 In the summer of 2012 my husband, kids and I went on a vacation to Florida.  After visiting with my grandpa and aunt for a night, we went to Cocoa Beach for a day and… Read More

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Some of my favorite links

  • Autoimmune Mom
  • American Autoimmune Disease Association
  • Arthritis Ashley
  • But you don’t look sick
  • Counting My Spoons
  • Jennifer’s Way
  • Reasonably Well
  • Sjogren’s Syndrome Foundation
  • Sjogren’s World
  • Thoughts and Ramblings on Life, Love and Health

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