As my body attacks itself - my journey with autoimmune disease & chronic pain
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Category Archives: Chronic Fatigue

Feb132015Feb 13 2015
0

No, I won’t be doing my hair today…

I saw this image on twitter recently and it first made me laugh…because, yep, that’s life.  But then it made me sad. Remember back last spring when I tried the experiment to see if looking better would make me feel better?  I first talked about it here and then updated here. I’d decided to put… Read More

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Feb92015Feb 10 2015
1

#ChronicLife as a #ChronicMom

Last week Britt Johnson (@HurtBlogger) decided to go live with chronic disease.  She described her experiment in a blog post and then live tweeted her life for 48 hours with #ChronicLife. Others joined her and found solidarity among the masses and freedom in the ability to “say it like it is.” Some started to honestly… Read More

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Jan302015
1

Connecting dots

Sometimes it takes me a while to put together different pieces of information with this whole health-issues thing! This week I was sitting at my cubicle desk working and complaining to myself in my head about how I always feel sweaty yet cold and clammy.  All of the sudden I thought “wait – that’s how… Read More

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Jan212015
4

Is it a good thing, bad thing, an “is what it is” type of thing?

I love that blogging is a kind of conversation.  I read something on one blog, something else on another, get to thinking and the next thing I know I’m putting a post out there that adds to the conversation. Today I read two that got me writing this one.  The first was a post by… Read More

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Jan212015
0

What to do with your medical data

I’ve been in several conversations lately about the need for patients to get their medical records and data. I wrote a post recently about the need to read our medical records as I found 16 errors in the write-ups from 6 visits with a doctor. Julie Ryan asked me to write a guest post for… Read More

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Jan132015Jan 14 2015
1

The difficulty of having a glimmer of “better” for only a brief time

When I came back from Philly I had an action plan.  The dr made sure I took careful notes and knew what to do first, second, and so on. My first step was 2 weeks of prednisone to determine which symptoms would be relieved (because they were due to inflammation) and which wouldn’t (because they… Read More

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Dec12014Jan 14 2015
1

Deja vu

I was thinking about writing a post today about all of the issues I had over the long holiday break due to my stupid autoimmune disease.  But when I sat down to start writing I had a vague memory of one from last year.  So I looked through my old posts, and sure enough there… Read More

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Sep122014Jan 14 2015
0

“Just go home” – the struggle chronic illness sufferers have with this advice

First, before I get into the real point of this post – holy cow, it’s been a long time since I’ve posted…I really need to be more regular (for my own sake – it’s so good for me to organize and communicate my thoughts in this way).  So, first, a couple of really quick updates.… Read More

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May292014Jan 14 2015
1

Temporarily on hold until I can deal with it

I’ve been putting off posting this – mostly because I’m putting off dealing with it all until I can come up for air and do so properly. See, it’s what I call “crazy season” – it’s the time of year that’s filled with graduations, end of school events, dance recitals (and final competitions for the… Read More

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Apr292014Jan 14 2015
1

Update on my “Look better feel better” experiment

It’s been 21 days since I began my attempt to look a little better in hopes that I’d feel a little better.  I wrote about it after the first week or so here. Other than this past Sunday when I spent the day reading, watching TV and in general vegging out with no kids and… Read More

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Some of my favorite links

  • Autoimmune Mom
  • American Autoimmune Disease Association
  • Arthritis Ashley
  • But you don’t look sick
  • Counting My Spoons
  • Jennifer’s Way
  • Reasonably Well
  • Sjogren’s Syndrome Foundation
  • Sjogren’s World
  • Thoughts and Ramblings on Life, Love and Health

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  • Invisible illnesses
  • Parenting
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  • Symptom progressions & ebb/flow
  • Tracking medical records & history
  • Treatments
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