I saw this image on twitter recently and it first made me laugh…because, yep, that’s life. But then it made me sad. Remember back last spring when I tried the experiment to see if looking better would make me feel better? I first talked about it here and then updated here. I’d decided to put… Read More
Last week Britt Johnson (@HurtBlogger) decided to go live with chronic disease. She described her experiment in a blog post and then live tweeted her life for 48 hours with #ChronicLife. Others joined her and found solidarity among the masses and freedom in the ability to “say it like it is.” Some started to honestly… Read More
Sometimes it takes me a while to put together different pieces of information with this whole health-issues thing! This week I was sitting at my cubicle desk working and complaining to myself in my head about how I always feel sweaty yet cold and clammy. All of the sudden I thought “wait – that’s how… Read More
I love that blogging is a kind of conversation. I read something on one blog, something else on another, get to thinking and the next thing I know I’m putting a post out there that adds to the conversation. Today I read two that got me writing this one. The first was a post by… Read More
I’ve been in several conversations lately about the need for patients to get their medical records and data. I wrote a post recently about the need to read our medical records as I found 16 errors in the write-ups from 6 visits with a doctor. Julie Ryan asked me to write a guest post for… Read More
When I came back from Philly I had an action plan. The dr made sure I took careful notes and knew what to do first, second, and so on. My first step was 2 weeks of prednisone to determine which symptoms would be relieved (because they were due to inflammation) and which wouldn’t (because they… Read More
I was thinking about writing a post today about all of the issues I had over the long holiday break due to my stupid autoimmune disease. But when I sat down to start writing I had a vague memory of one from last year. So I looked through my old posts, and sure enough there… Read More
First, before I get into the real point of this post – holy cow, it’s been a long time since I’ve posted…I really need to be more regular (for my own sake – it’s so good for me to organize and communicate my thoughts in this way). So, first, a couple of really quick updates.… Read More
I’ve been putting off posting this – mostly because I’m putting off dealing with it all until I can come up for air and do so properly. See, it’s what I call “crazy season” – it’s the time of year that’s filled with graduations, end of school events, dance recitals (and final competitions for the… Read More
It’s been 21 days since I began my attempt to look a little better in hopes that I’d feel a little better. I wrote about it after the first week or so here. Other than this past Sunday when I spent the day reading, watching TV and in general vegging out with no kids and… Read More