So when the doctor completely reversed his plan of attack after 8 months with zero explanation (which lead to me “firing” him and traveling half way across the country to see a Sjogren’s specialist), he did give a slight explanation… He said that treating my Sjogren’s with immunosuppresive meds would be “like killing an ant… Read More
My 9 and a half year old daughter had partial braces put on two days ago. They’re on her top front 4 teeth and then one in the back on each side to hold the wire in place. As someone that had braces for 6 years, I sympathize with her pain. I knew they’d be… Read More
I love that blogging is a kind of conversation. I read something on one blog, something else on another, get to thinking and the next thing I know I’m putting a post out there that adds to the conversation. Today I read two that got me writing this one. The first was a post by… Read More
I’ve been in several conversations lately about the need for patients to get their medical records and data. I wrote a post recently about the need to read our medical records as I found 16 errors in the write-ups from 6 visits with a doctor. Julie Ryan asked me to write a guest post for… Read More
I was thinking about writing a post today about all of the issues I had over the long holiday break due to my stupid autoimmune disease. But when I sat down to start writing I had a vague memory of one from last year. So I looked through my old posts, and sure enough there… Read More
First, before I get into the real point of this post – holy cow, it’s been a long time since I’ve posted…I really need to be more regular (for my own sake – it’s so good for me to organize and communicate my thoughts in this way). So, first, a couple of really quick updates.… Read More
I’ve been putting off posting this – mostly because I’m putting off dealing with it all until I can come up for air and do so properly. See, it’s what I call “crazy season” – it’s the time of year that’s filled with graduations, end of school events, dance recitals (and final competitions for the… Read More
It’s been 21 days since I began my attempt to look a little better in hopes that I’d feel a little better. I wrote about it after the first week or so here. Other than this past Sunday when I spent the day reading, watching TV and in general vegging out with no kids and… Read More
It might have been the 6 episodes of “What Not to Wear” that I watched the weekend before last. Or it might be the weather that is trying to warm up (we get glimpses of spring weather here and there, although it’s past the middle of April and it’s still cold enough that I make the… Read More
I’ve always been an optimistic person. I’ve been cheerful, energetic and usually up for anything. But the fatigue, pain, muscle weakness and fine motor skill issues – not to mention the emotional toll – of dealing with autoimmune disease has left me a little lacking in the social calendar. I’ve backed out of plans, turned… Read More