My last post was July 2015. It’s now November 2017. I’m not sure at all, even in the slightest, how 27 months have gone by. I have thought many, many times about what I want to sit down and write and I never have gotten to it. But several things happening lately have convinced me… Read More
Some people get really busy during the holidays, for me it’s April and May. I call it “silly season.” It’s the perfect storm of dance competition season hasn’t yet ended, baseball tournament season has begun, both my job for the previous 5 years and this one seem to ramp up at the end of the… Read More
I saw this image posted somewhere – some facebook or twitter or something. I saved it to my phone to write about some day and while I was flipping through my photos yesterday looking for an old one of the kids or something I ran across it. Yes. This. I have been the idiot that… Read More
You may remember when I wrote about my 9 year old having an episode of alopecia areata last summer. It was heart-breaking and gut-wrenching for me. The spot filled back in after the treatment the pediatric dermatologist gave us to use and I prayed and hoped that it would be the end of it, that… Read More
I used to be the person that could juggle a million balls in the air. I wrote a chemistry textbook, made prom dresses for some of my students, taught high school full time, had a toddler and was pregnant all at the same time during one point in my life. Not only can’t I do… Read More
My husband and I were on the way home from a parent meeting for parents of kids going into middle school next year (first, let’s stop and acknowledge that I’m so not ok with my boy growing up!). I don’t even remember how it came up but I described to him just one example of… Read More
I’ve talked a lot about the guilt that comes with having a chronic illness – guilt that I’m not able to do some things with my kids, guilt that my husband and kids have to pick up the slack for me around the house, guilt that I can’t volunteer and help others like I would… Read More
In the past year and a half that I’ve been writing this blog I’ve slowly been becoming more involved in the chronic illness social community – the Sjogrensworld.com blog, following twitter and facebook people that are advocating, struggling or otherwise talking about life with chronic illness (most of them with autoimmune diseases or fibromyalgia) and… Read More
I wrote about my experiences with Brain Fog earlier on this blog. It’s still happening, and probably increasingly so (both in frequency and severity). The following excerpt is a pretty good summation of how I’ve felt for the past few years. It’s from Susan McDermott, M.D.’s talk “Brain Fog and Other Central Nervous System Symptoms:… Read More
I saw this image on twitter recently and it first made me laugh…because, yep, that’s life. But then it made me sad. Remember back last spring when I tried the experiment to see if looking better would make me feel better? I first talked about it here and then updated here. I’d decided to put… Read More