Some people get really busy during the holidays, for me it’s April and May. I call it “silly season.” It’s the perfect storm of dance competition season hasn’t yet ended, baseball tournament season has begun, both my job for the previous 5 years and this one seem to ramp up at the end of the… Read More
I haven’t written in a while – it’s what I call “silly season” – that perfect storm of the last part of dance competition season, the first part of baseball season, the end of the school year, Memorial Day, Birthdays, and so on…and this year I have the struggles with my daughter’s health thrown in. … Read More
I used to be the person that could juggle a million balls in the air. I wrote a chemistry textbook, made prom dresses for some of my students, taught high school full time, had a toddler and was pregnant all at the same time during one point in my life. Not only can’t I do… Read More
March is autoimmune awareness month. In honor of it I’m posting infographics on my facebook and twitter sharing various autoimmune disease facts throughout the month. But a facebook poll from a fellow Sjogren’s patient got me thinking – and it lead me to a realization of how many types of awareness need increasing! Of course… Read More
My husband and I were on the way home from a parent meeting for parents of kids going into middle school next year (first, let’s stop and acknowledge that I’m so not ok with my boy growing up!). I don’t even remember how it came up but I described to him just one example of… Read More
I wrote about my experiences with Brain Fog earlier on this blog. It’s still happening, and probably increasingly so (both in frequency and severity). The following excerpt is a pretty good summation of how I’ve felt for the past few years. It’s from Susan McDermott, M.D.’s talk “Brain Fog and Other Central Nervous System Symptoms:… Read More
I had a neuropsych evaluation last week. The specialist in Philly (“Dr. D”) wanted me to have a cognitive evaluation completed before I began the Imuran (immunosuppresive) as a baseline to see if there are any improvements after I’ve been on the meds for a while. I received the report from that evaluation on Monday. … Read More
So when the doctor completely reversed his plan of attack after 8 months with zero explanation (which lead to me “firing” him and traveling half way across the country to see a Sjogren’s specialist), he did give a slight explanation… He said that treating my Sjogren’s with immunosuppresive meds would be “like killing an ant… Read More
Sometimes it takes me a while to put together different pieces of information with this whole health-issues thing! This week I was sitting at my cubicle desk working and complaining to myself in my head about how I always feel sweaty yet cold and clammy. All of the sudden I thought “wait – that’s how… Read More
Thank you so very much to everyone that has emailed, tweeted, messaged, prayed for and thought about me as I went to Philly to see a Sjogren’s specialist after my non-satisfying experiences with local doctors. The experience was definitely worth the time and expense of the trip! He was a wonderful doctor – thorough, asked… Read More