As my body attacks itself - my journey with autoimmune disease & chronic pain
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Category Archives: Symptom progressions & ebb/flow

Nov42013Jan 14 2015
0

Talking to my kids

When I began this journey with autoimmune and chronic disease my children were 5 and 7 years old.  I want my kiddos to be kiddos as long as possible.  They shouldn’t have to be concerned with adult things like bills, work, stress, illnesses and so on.  So for a long time I didn’t tell my… Read More

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Nov22013Jan 14 2015
0

Invisible disease

I talked about my various painful experiences throughout my life in my opening post.  They include the usual things people experience – injuries, surgeries and so forth.  All acute (short-term) and all things that would heal and my life would go on with the experience leaving behind nothing more than a memory and maybe a… Read More

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Nov12013Jan 20 2015
8

And how would you rate your pain today?

Each time I go a doctor, even if it is unrelated to the conditions that are causing me pain, I’m asked “do you have any pain today?” I often chuckle at this question.  They’re well-meaning, I know, and I’m not laughing at the nurse.  My chuckle is more of a shaking-my-head-in-resignation reflex.  Because I’m always in… Read More

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Nov12013Jan 14 2015
2

I hurt

I hurt. All the time. Every day. Since about January 2011. I’ve experienced physical pain at various points my life – I had shingles in 9th grade, I had 2 knee surgeries when I was 20 years-old, a broken rib (while having to perform ballet – pas de duex en pointe – on stage and… Read More

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Some of my favorite links

  • Autoimmune Mom
  • American Autoimmune Disease Association
  • Arthritis Ashley
  • But you don’t look sick
  • Counting My Spoons
  • Jennifer’s Way
  • Reasonably Well
  • Sjogren’s Syndrome Foundation
  • Sjogren’s World
  • Thoughts and Ramblings on Life, Love and Health

Categories

  • Autoimmune disease
  • Brain Fog
  • Career
  • Chronic Fatigue
  • Chronic Pain
  • Diagnosis (and undiagnosis or misdiagnosis)
  • Emotional Toll
  • Gluten-free
  • Invisible illnesses
  • Parenting
  • Personal and social life
  • Sjogren's
  • Symptom progressions & ebb/flow
  • Tracking medical records & history
  • Treatments
  • Uncategorized
  • Working with doctors

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