As my body attacks itself - my journey with autoimmune disease & chronic pain
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Category Archives: Working with doctors

Nov182013Jan 14 2015
4

Neuropathy testing – EMG, NCS & a very frustrating experience with a doctor

I went to the neurologist today for an EMG (electromyography) and NCS (nerve conduction study).  The purpose of these procedures was to test for, and document, neuropathy (that I wrote about previously). The nurse conducted the NCS first.  They stick various sensors on to you and zap you in places with electricity to measure how… Read More

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Nov142013Jan 14 2015
6

Third opinion update

I wrote previously about my musical diagnoses and the toll that took on my emotional health and ability to accept a diagnosis.  To sum it up briefly, I went from a diagnosis of Rheumatoid Arthritis (RA) for 2 years to a diagnosis of Sjogren’s Syndrom with possible RA and Lupus overlap for the last 6-7… Read More

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Nov112013Jan 14 2015
2

My scariest symptom yet

I’m pretty sure everyone has a strange hair some place on them that grows longer than it should – at least I’d like to think everyone does because I don’t want to be the only weirdo out there!  Mine is on my right wrist.  It’s right in the middle of that round bone that sticks… Read More

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Nov62013Jan 14 2015
1

Second Opinions

As I’ve stated many times already, I’m a mess.  I have mental blocks that cause me to do or not do things that I know, intellectually, are silly.  Yet it doesn’t stop them from affecting my behaviors. One of these mental blocks is seeking a second opinion. Here’s an example of a time that a… Read More

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Nov52013Jan 14 2015
4

Musical Diagnoses

I began noticing symptoms in early 2008.  I was diagnosed with Rheumatoid Arthritis in March 2011.  That’s three years of wondering “what is wrong with me?”  That’s hard on a person.  You doubt yourself – are you really feeling these things or is it some kind of personal flaw?  Are you really fatigued or are… Read More

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Nov42013Jan 14 2015
0

The path to diagnosis – 2011 to 2013

My last post talked about the pre-diagnosis years – 2008 to 2011.  That’s when I was having symptoms but hadn’t yet been diagnosed with an autoimmune disease. It was March 2011 when my doctor called and told me that I had Rheumatoid Arthritis. The Friday before that call was when the nurse had informed me… Read More

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Nov42013Jan 14 2015
0

The path to diagnosis – 2008 to 2011

It’s been a very long, and meandering, path to diagnosis…and it still may not be done.  Although I have one firm diagnosis (Sjogren’s syndrome – which I talked about here), we’re not sure yet if that’s the only autoimmune disease I have or if there are others overlapping. This first “path to diagnosis” post will… Read More

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Nov12013Jan 20 2015
8

And how would you rate your pain today?

Each time I go a doctor, even if it is unrelated to the conditions that are causing me pain, I’m asked “do you have any pain today?” I often chuckle at this question.  They’re well-meaning, I know, and I’m not laughing at the nurse.  My chuckle is more of a shaking-my-head-in-resignation reflex.  Because I’m always in… Read More

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Some of my favorite links

  • Autoimmune Mom
  • American Autoimmune Disease Association
  • Arthritis Ashley
  • But you don’t look sick
  • Counting My Spoons
  • Jennifer’s Way
  • Reasonably Well
  • Sjogren’s Syndrome Foundation
  • Sjogren’s World
  • Thoughts and Ramblings on Life, Love and Health

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