As my body attacks itself - my journey with autoimmune disease & chronic pain
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Nov112013Jan 14 2015
2

My scariest symptom yet

I’m pretty sure everyone has a strange hair some place on them that grows longer than it should – at least I’d like to think everyone does because I don’t want to be the only weirdo out there!  Mine is on my right wrist.  It’s right in the middle of that round bone that sticks… Read More

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Nov62013Jan 14 2015
1

Second Opinions

As I’ve stated many times already, I’m a mess.  I have mental blocks that cause me to do or not do things that I know, intellectually, are silly.  Yet it doesn’t stop them from affecting my behaviors. One of these mental blocks is seeking a second opinion. Here’s an example of a time that a… Read More

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Nov52013Jan 14 2015
4

Musical Diagnoses

I began noticing symptoms in early 2008.  I was diagnosed with Rheumatoid Arthritis in March 2011.  That’s three years of wondering “what is wrong with me?”  That’s hard on a person.  You doubt yourself – are you really feeling these things or is it some kind of personal flaw?  Are you really fatigued or are… Read More

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Nov42013Jan 14 2015
0

The path to diagnosis – 2011 to 2013

My last post talked about the pre-diagnosis years – 2008 to 2011.  That’s when I was having symptoms but hadn’t yet been diagnosed with an autoimmune disease. It was March 2011 when my doctor called and told me that I had Rheumatoid Arthritis. The Friday before that call was when the nurse had informed me… Read More

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Nov42013Jan 14 2015
0

The path to diagnosis – 2008 to 2011

It’s been a very long, and meandering, path to diagnosis…and it still may not be done.  Although I have one firm diagnosis (Sjogren’s syndrome – which I talked about here), we’re not sure yet if that’s the only autoimmune disease I have or if there are others overlapping. This first “path to diagnosis” post will… Read More

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Nov42013Jan 14 2015
0

Talking to my kids

When I began this journey with autoimmune and chronic disease my children were 5 and 7 years old.  I want my kiddos to be kiddos as long as possible.  They shouldn’t have to be concerned with adult things like bills, work, stress, illnesses and so on.  So for a long time I didn’t tell my… Read More

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Nov42013Jan 14 2015
0

So what exactly do you have?

I’m often asked “So what exactly do you have?” That’s a good question!  And if you figure out the answer to it, please fill me in! There are over 80 autoimmune diseases – and that number is increasing as more are discovered.  The problem is that so very little is known about them!  They’re complex,… Read More

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Nov22013Jan 14 2015
0

Invisible disease

I talked about my various painful experiences throughout my life in my opening post.  They include the usual things people experience – injuries, surgeries and so forth.  All acute (short-term) and all things that would heal and my life would go on with the experience leaving behind nothing more than a memory and maybe a… Read More

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Nov12013Jan 20 2015
8

And how would you rate your pain today?

Each time I go a doctor, even if it is unrelated to the conditions that are causing me pain, I’m asked “do you have any pain today?” I often chuckle at this question.  They’re well-meaning, I know, and I’m not laughing at the nurse.  My chuckle is more of a shaking-my-head-in-resignation reflex.  Because I’m always in… Read More

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Nov12013Jan 14 2015
2

I hurt

I hurt. All the time. Every day. Since about January 2011. I’ve experienced physical pain at various points my life – I had shingles in 9th grade, I had 2 knee surgeries when I was 20 years-old, a broken rib (while having to perform ballet – pas de duex en pointe – on stage and… Read More

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Some of my favorite links

  • Autoimmune Mom
  • American Autoimmune Disease Association
  • Arthritis Ashley
  • But you don’t look sick
  • Counting My Spoons
  • Jennifer’s Way
  • Reasonably Well
  • Sjogren’s Syndrome Foundation
  • Sjogren’s World
  • Thoughts and Ramblings on Life, Love and Health

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