Now that I’m determined to begin writing again for my own mental and emotional health, I’ve realized that sometimes I don’t know where to start. I have a list of topics I want to address – but the problem is that they’re so intertwined that I don’t know which one to start with, or how… Read More
My last post was July 2015. It’s now November 2017. I’m not sure at all, even in the slightest, how 27 months have gone by. I have thought many, many times about what I want to sit down and write and I never have gotten to it. But several things happening lately have convinced me… Read More
Some people get really busy during the holidays, for me it’s April and May. I call it “silly season.” It’s the perfect storm of dance competition season hasn’t yet ended, baseball tournament season has begun, both my job for the previous 5 years and this one seem to ramp up at the end of the… Read More
I saw this image posted somewhere – some facebook or twitter or something. I saved it to my phone to write about some day and while I was flipping through my photos yesterday looking for an old one of the kids or something I ran across it. Yes. This. I have been the idiot that… Read More
I used to be the person that could juggle a million balls in the air. I wrote a chemistry textbook, made prom dresses for some of my students, taught high school full time, had a toddler and was pregnant all at the same time during one point in my life. Not only can’t I do… Read More
I don’t know if it started happening because I got the neuropsych evaluation that documented my “Brain Fog” or if it’s just a coincidence that it started happening around the same time, but either way I’ve noticed lately that my family is starting to help me out with my memory and processing problems. My husband… Read More
March is autoimmune awareness month. In honor of it I’m posting infographics on my facebook and twitter sharing various autoimmune disease facts throughout the month. But a facebook poll from a fellow Sjogren’s patient got me thinking – and it lead me to a realization of how many types of awareness need increasing! Of course… Read More
I’ve talked a lot about the guilt that comes with having a chronic illness – guilt that I’m not able to do some things with my kids, guilt that my husband and kids have to pick up the slack for me around the house, guilt that I can’t volunteer and help others like I would… Read More
In the past year and a half that I’ve been writing this blog I’ve slowly been becoming more involved in the chronic illness social community – the Sjogrensworld.com blog, following twitter and facebook people that are advocating, struggling or otherwise talking about life with chronic illness (most of them with autoimmune diseases or fibromyalgia) and… Read More
I had a neuropsych evaluation last week. The specialist in Philly (“Dr. D”) wanted me to have a cognitive evaluation completed before I began the Imuran (immunosuppresive) as a baseline to see if there are any improvements after I’ve been on the meds for a while. I received the report from that evaluation on Monday. … Read More