So it’s been waaaaaay too long since I’ve updated. What have I been up to? Baseball tournaments, dance, baking a bazillion gluten-free breads and treats for my daughter. We went to the children’s hospital recently for our long-awaited appointment with the pediatric gastroenterologist. A very wonderful doctor confirmed that my daughter does not (at least… Read More
Some people get really busy during the holidays, for me it’s April and May. I call it “silly season.” It’s the perfect storm of dance competition season hasn’t yet ended, baseball tournament season has begun, both my job for the previous 5 years and this one seem to ramp up at the end of the… Read More
I saw this image posted somewhere – some facebook or twitter or something. I saved it to my phone to write about some day and while I was flipping through my photos yesterday looking for an old one of the kids or something I ran across it. Yes. This. I have been the idiot that… Read More
I haven’t written anything in a while – mostly because I just haven’t known what to write because so much is going through my mind these days. It’s taxing and complicated to have autoimmune disease yourself. It’s a million times worse to watch it happening in your child. I’m so very thankful that I’ve gone… Read More
You may remember when I wrote about my 9 year old having an episode of alopecia areata last summer. It was heart-breaking and gut-wrenching for me. The spot filled back in after the treatment the pediatric dermatologist gave us to use and I prayed and hoped that it would be the end of it, that… Read More
I used to be the person that could juggle a million balls in the air. I wrote a chemistry textbook, made prom dresses for some of my students, taught high school full time, had a toddler and was pregnant all at the same time during one point in my life. Not only can’t I do… Read More
I don’t know if it started happening because I got the neuropsych evaluation that documented my “Brain Fog” or if it’s just a coincidence that it started happening around the same time, but either way I’ve noticed lately that my family is starting to help me out with my memory and processing problems. My husband… Read More
I had a neuropsych evaluation last week. The specialist in Philly (“Dr. D”) wanted me to have a cognitive evaluation completed before I began the Imuran (immunosuppresive) as a baseline to see if there are any improvements after I’ve been on the meds for a while. I received the report from that evaluation on Monday. … Read More
I saw this image on twitter recently and it first made me laugh…because, yep, that’s life. But then it made me sad. Remember back last spring when I tried the experiment to see if looking better would make me feel better? I first talked about it here and then updated here. I’d decided to put… Read More
Last week Britt Johnson (@HurtBlogger) decided to go live with chronic disease. She described her experiment in a blog post and then live tweeted her life for 48 hours with #ChronicLife. Others joined her and found solidarity among the masses and freedom in the ability to “say it like it is.” Some started to honestly… Read More