As my body attacks itself - my journey with autoimmune disease & chronic pain
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Category Archives: Parenting

Jul122015
0

The Gluten-Free Bakery

So it’s been waaaaaay too long since I’ve updated.  What have I been up to?  Baseball tournaments, dance, baking a bazillion gluten-free breads and treats for my daughter. We went to the children’s hospital recently for our long-awaited appointment with the pediatric gastroenterologist.  A very wonderful doctor confirmed that my daughter does not (at least… Read More

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May152015May 18 2015
0

Some musings during my “silly season”

Some people get really busy during the holidays, for me it’s April and May.  I call it “silly season.” It’s the perfect storm of dance competition season hasn’t yet ended, baseball tournament season has begun, both my job for the previous 5 years and this one seem to ramp up at the end of the… Read More

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Apr72015
4

The day-to-day living wears you out

I saw this image posted somewhere – some facebook or twitter or something.  I saved it to my phone to write about some day and while I was flipping through my photos yesterday looking for an old one of the kids or something I ran across it. Yes.  This. I have been the idiot that… Read More

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Apr22015Apr 2 2015
4

Alopecia, Celiac, Gluten, oh my!

I haven’t written anything in a while – mostly because I just haven’t known what to write because so much is going through my mind these days. It’s taxing and complicated to have autoimmune disease yourself.  It’s a million times worse to watch it happening in your child.  I’m so very thankful that I’ve gone… Read More

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Mar232015
0

My daughter’s second alopecia occurrence

You may remember when I wrote about my 9 year old having an episode of alopecia areata last summer.  It was heart-breaking and gut-wrenching for me.  The spot filled back in after the treatment the pediatric dermatologist gave us to use and I prayed and hoped that it would be the end of it, that… Read More

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Mar212015Mar 22 2015
8

I’m not flaky, I’m sick

I used to be the person that could juggle a million balls in the air.  I wrote a chemistry textbook, made prom dresses for some of my students, taught high school full time, had a toddler and was pregnant all at the same time during one point in my life. Not only can’t I do… Read More

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Mar122015Mar 12 2015
0

“I’ll send you an email” – Signs my family is learning accommodations that work with my Brain Fog!

I don’t know if it started happening because I got the neuropsych evaluation that documented my “Brain Fog” or if it’s just a coincidence that it started happening around the same time, but either way I’ve noticed lately that my family is starting to help me out with my memory and processing problems. My husband… Read More

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Feb182015
2

Chronic illness and Depression

I had a neuropsych evaluation last week.  The specialist in Philly (“Dr. D”) wanted me to have a cognitive evaluation completed before I began the Imuran (immunosuppresive) as a baseline to see if there are any improvements after I’ve been on the meds for a while.  I received the report from that evaluation on Monday. … Read More

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Feb132015Feb 13 2015
0

No, I won’t be doing my hair today…

I saw this image on twitter recently and it first made me laugh…because, yep, that’s life.  But then it made me sad. Remember back last spring when I tried the experiment to see if looking better would make me feel better?  I first talked about it here and then updated here. I’d decided to put… Read More

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Feb92015Feb 10 2015
1

#ChronicLife as a #ChronicMom

Last week Britt Johnson (@HurtBlogger) decided to go live with chronic disease.  She described her experiment in a blog post and then live tweeted her life for 48 hours with #ChronicLife. Others joined her and found solidarity among the masses and freedom in the ability to “say it like it is.” Some started to honestly… Read More

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Some of my favorite links

  • Autoimmune Mom
  • American Autoimmune Disease Association
  • Arthritis Ashley
  • But you don’t look sick
  • Counting My Spoons
  • Jennifer’s Way
  • Reasonably Well
  • Sjogren’s Syndrome Foundation
  • Sjogren’s World
  • Thoughts and Ramblings on Life, Love and Health

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