As my body attacks itself - my journey with autoimmune disease & chronic pain
  • Facebook
  • Twitter
  • RSS
  • Email
Menu
Skip to content
  • Home
  • The Blog
  • The Book
  • About Me
  • Contact Me

Category Archives: Sjogren’s

May152015May 18 2015
0

Some musings during my “silly season”

Some people get really busy during the holidays, for me it’s April and May.  I call it “silly season.” It’s the perfect storm of dance competition season hasn’t yet ended, baseball tournament season has begun, both my job for the previous 5 years and this one seem to ramp up at the end of the… Read More

Share
  • Share
  • Tweet
  • Email
  • Pin it
  • Share
Apr282015
0

Sjogren’s Awareness Month Book Sale!

I haven’t written in a while – it’s what I call “silly season” – that perfect storm of the last part of dance competition season, the first part of baseball season, the end of the school year, Memorial Day, Birthdays, and so on…and this year I have the struggles with my daughter’s health thrown in. … Read More

Share
  • Share
  • Tweet
  • Email
  • Pin it
  • Share
Mar212015Mar 22 2015
8

I’m not flaky, I’m sick

I used to be the person that could juggle a million balls in the air.  I wrote a chemistry textbook, made prom dresses for some of my students, taught high school full time, had a toddler and was pregnant all at the same time during one point in my life. Not only can’t I do… Read More

Share
  • Share
  • Tweet
  • Email
  • Pin it
  • Share
Mar42015Mar 5 2015
2

Autoimmune Awareness Month: How can we increase medical professionals’ awareness?

March is autoimmune awareness month.  In honor of it I’m posting infographics on my facebook and twitter sharing various autoimmune disease facts throughout the month. But a facebook poll from a fellow Sjogren’s patient got me thinking – and it lead me to a realization of how many types of awareness need increasing! Of course… Read More

Share
  • Share
  • Tweet
  • Email
  • Pin it
  • Share
Feb242015Feb 25 2015
9

Just one example of daily impact of invisible chronic disease

My husband and I were on the way home from a parent meeting for parents of kids going into middle school next year (first, let’s stop and acknowledge that I’m so not ok with my boy growing up!). I don’t even remember how it came up but I described to him just one example of… Read More

Share
  • Share
  • Tweet
  • Email
  • Pin it
  • Share
Feb192015
2

Brain Fog – Neuropsych report

I wrote about my experiences with Brain Fog earlier on this blog. It’s still happening, and probably increasingly so (both in frequency and severity). The following excerpt is a pretty good summation of how I’ve felt for the past few years.  It’s from Susan McDermott, M.D.’s talk “Brain Fog and Other Central Nervous System Symptoms:… Read More

Share
  • Share
  • Tweet
  • Email
  • Pin it
  • Share
Feb182015
2

Chronic illness and Depression

I had a neuropsych evaluation last week.  The specialist in Philly (“Dr. D”) wanted me to have a cognitive evaluation completed before I began the Imuran (immunosuppresive) as a baseline to see if there are any improvements after I’ve been on the meds for a while.  I received the report from that evaluation on Monday. … Read More

Share
  • Share
  • Tweet
  • Email
  • Pin it
  • Share
Feb62015Feb 4 2015
0

Fatigue is the ant that carries his own sledgehammer

So when the doctor completely reversed his plan of attack after 8 months with zero explanation (which lead to me “firing” him and traveling half way across the country to see a Sjogren’s specialist), he did give a slight explanation… He said that treating my Sjogren’s with immunosuppresive meds would be “like killing an ant… Read More

Share
  • Share
  • Tweet
  • Email
  • Pin it
  • Share
Jan302015
1

Connecting dots

Sometimes it takes me a while to put together different pieces of information with this whole health-issues thing! This week I was sitting at my cubicle desk working and complaining to myself in my head about how I always feel sweaty yet cold and clammy.  All of the sudden I thought “wait – that’s how… Read More

Share
  • Share
  • Tweet
  • Email
  • Pin it
  • Share
Dec172014Jan 14 2015
2

Back from Philly

Thank you so very much to everyone that has emailed, tweeted, messaged, prayed for and thought about me as I went to Philly to see a Sjogren’s specialist after my non-satisfying experiences with local doctors. The experience was definitely worth the time and expense of the trip!  He was a wonderful doctor – thorough, asked… Read More

Share
  • Share
  • Tweet
  • Email
  • Pin it
  • Share

Posts navigation

1 2 Next Page

Get new posts via email

Some of my favorite links

  • Autoimmune Mom
  • American Autoimmune Disease Association
  • Arthritis Ashley
  • But you don’t look sick
  • Counting My Spoons
  • Jennifer’s Way
  • Reasonably Well
  • Sjogren’s Syndrome Foundation
  • Sjogren’s World
  • Thoughts and Ramblings on Life, Love and Health

Categories

  • Autoimmune disease
  • Brain Fog
  • Career
  • Chronic Fatigue
  • Chronic Pain
  • Diagnosis (and undiagnosis or misdiagnosis)
  • Emotional Toll
  • Gluten-free
  • Invisible illnesses
  • Parenting
  • Personal and social life
  • Sjogren's
  • Symptom progressions & ebb/flow
  • Tracking medical records & history
  • Treatments
  • Uncategorized
  • Working with doctors

Archives

Site theme made with ♥ by Angie Makes | Content © Kelly Morgan Dempewolf - 2015
Angie Makes Feminine WordPress Themes