My last post was July 2015. It’s now November 2017. I’m not sure at all, even in the slightest, how 27 months have gone by. I have thought many, many times about what I want to sit down and write and I never have gotten to it. But several things happening lately have convinced me… Read More
Some people get really busy during the holidays, for me it’s April and May. I call it “silly season.” It’s the perfect storm of dance competition season hasn’t yet ended, baseball tournament season has begun, both my job for the previous 5 years and this one seem to ramp up at the end of the… Read More
I saw this image posted somewhere – some facebook or twitter or something. I saved it to my phone to write about some day and while I was flipping through my photos yesterday looking for an old one of the kids or something I ran across it. Yes. This. I have been the idiot that… Read More
My husband and I were on the way home from a parent meeting for parents of kids going into middle school next year (first, let’s stop and acknowledge that I’m so not ok with my boy growing up!). I don’t even remember how it came up but I described to him just one example of… Read More
I wrote about my experiences with Brain Fog earlier on this blog. It’s still happening, and probably increasingly so (both in frequency and severity). The following excerpt is a pretty good summation of how I’ve felt for the past few years. It’s from Susan McDermott, M.D.’s talk “Brain Fog and Other Central Nervous System Symptoms:… Read More
So when the doctor completely reversed his plan of attack after 8 months with zero explanation (which lead to me “firing” him and traveling half way across the country to see a Sjogren’s specialist), he did give a slight explanation… He said that treating my Sjogren’s with immunosuppresive meds would be “like killing an ant… Read More
Sometimes it takes me a while to put together different pieces of information with this whole health-issues thing! This week I was sitting at my cubicle desk working and complaining to myself in my head about how I always feel sweaty yet cold and clammy. All of the sudden I thought “wait – that’s how… Read More
I’ve been in several conversations lately about the need for patients to get their medical records and data. I wrote a post recently about the need to read our medical records as I found 16 errors in the write-ups from 6 visits with a doctor. Julie Ryan asked me to write a guest post for… Read More
When I came back from Philly I had an action plan. The dr made sure I took careful notes and knew what to do first, second, and so on. My first step was 2 weeks of prednisone to determine which symptoms would be relieved (because they were due to inflammation) and which wouldn’t (because they… Read More
I was thinking about writing a post today about all of the issues I had over the long holiday break due to my stupid autoimmune disease. But when I sat down to start writing I had a vague memory of one from last year. So I looked through my old posts, and sure enough there… Read More