As my body attacks itself - my journey with autoimmune disease & chronic pain
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Category Archives: Symptom progressions & ebb/flow

Nov12017
5

Resuming after a not-so-brief pause

My last post was July 2015.  It’s now November 2017.  I’m not sure at all, even in the slightest, how 27 months have gone by.  I have thought many, many times about what I want to sit down and write and I never have gotten to it.  But several things happening lately have convinced me… Read More

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May152015May 18 2015
0

Some musings during my “silly season”

Some people get really busy during the holidays, for me it’s April and May.  I call it “silly season.” It’s the perfect storm of dance competition season hasn’t yet ended, baseball tournament season has begun, both my job for the previous 5 years and this one seem to ramp up at the end of the… Read More

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Apr72015
4

The day-to-day living wears you out

I saw this image posted somewhere – some facebook or twitter or something.  I saved it to my phone to write about some day and while I was flipping through my photos yesterday looking for an old one of the kids or something I ran across it. Yes.  This. I have been the idiot that… Read More

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Feb242015Feb 25 2015
9

Just one example of daily impact of invisible chronic disease

My husband and I were on the way home from a parent meeting for parents of kids going into middle school next year (first, let’s stop and acknowledge that I’m so not ok with my boy growing up!). I don’t even remember how it came up but I described to him just one example of… Read More

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Feb192015
2

Brain Fog – Neuropsych report

I wrote about my experiences with Brain Fog earlier on this blog. It’s still happening, and probably increasingly so (both in frequency and severity). The following excerpt is a pretty good summation of how I’ve felt for the past few years.  It’s from Susan McDermott, M.D.’s talk “Brain Fog and Other Central Nervous System Symptoms:… Read More

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Feb62015Feb 4 2015
0

Fatigue is the ant that carries his own sledgehammer

So when the doctor completely reversed his plan of attack after 8 months with zero explanation (which lead to me “firing” him and traveling half way across the country to see a Sjogren’s specialist), he did give a slight explanation… He said that treating my Sjogren’s with immunosuppresive meds would be “like killing an ant… Read More

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Jan302015
1

Connecting dots

Sometimes it takes me a while to put together different pieces of information with this whole health-issues thing! This week I was sitting at my cubicle desk working and complaining to myself in my head about how I always feel sweaty yet cold and clammy.  All of the sudden I thought “wait – that’s how… Read More

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Jan212015
0

What to do with your medical data

I’ve been in several conversations lately about the need for patients to get their medical records and data. I wrote a post recently about the need to read our medical records as I found 16 errors in the write-ups from 6 visits with a doctor. Julie Ryan asked me to write a guest post for… Read More

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Jan132015Jan 14 2015
1

The difficulty of having a glimmer of “better” for only a brief time

When I came back from Philly I had an action plan.  The dr made sure I took careful notes and knew what to do first, second, and so on. My first step was 2 weeks of prednisone to determine which symptoms would be relieved (because they were due to inflammation) and which wouldn’t (because they… Read More

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Dec12014Jan 14 2015
1

Deja vu

I was thinking about writing a post today about all of the issues I had over the long holiday break due to my stupid autoimmune disease.  But when I sat down to start writing I had a vague memory of one from last year.  So I looked through my old posts, and sure enough there… Read More

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Some of my favorite links

  • Autoimmune Mom
  • American Autoimmune Disease Association
  • Arthritis Ashley
  • But you don’t look sick
  • Counting My Spoons
  • Jennifer’s Way
  • Reasonably Well
  • Sjogren’s Syndrome Foundation
  • Sjogren’s World
  • Thoughts and Ramblings on Life, Love and Health

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